Privacy Notice

Who we are

Cauda Equina Support & Advocacy UK ("we", "us", "the charity") is a patient-led organisation supporting people affected by Cauda Equina Syndrome across the United Kingdom. We are the data controller for the information you share with us through this website.

You can contact us at dazroberts@caudaequinasupport.org.uk or on 07308 260895.

What we collect

When you contact us through the site, we may collect:

• Your name and email address (and phone number, if you give it)
• The content of your message and any details you choose to share
• Basic technical information from your visit, such as IP address and browser type, kept in short-lived server logs to keep the site secure

We do not run advertising trackers, behavioural analytics, or cross-site profiling tools.

Why we use it (lawful basis)

• Consent — when you fill in a form, you're choosing to share that information with us so we can reply.
• Legitimate interest — to run the charity, respond to enquiries, and keep the site secure.
• Legal obligation — where we have to keep records (for example, safeguarding concerns).

Who we share it with

We don't sell your information. We share it only with trusted service providers who help us run the charity:

• Our hosting and database provider, who stores form submissions on our behalf
• Our email provider, when we reply to you

If we ever had to disclose information to comply with a legal request or to protect someone's safety, we would do so.

How long we keep it

We keep enquiries for up to 24 months unless you've asked us to delete them sooner, or unless we're providing ongoing support and need the history to help you properly.

Your rights

Under UK GDPR you have the right to:

• Ask for a copy of the information we hold about you
• Have inaccurate information corrected
• Ask us to delete your information ("right to be forgotten")
• Restrict or object to how we use it
• Have your information transferred to another organisation

To exercise any of these, just email us. If you're not happy with how we've handled your information you can complain to the Information Commissioner's Office (ICO) at ico.org.uk or on 0303 123 1113.

Children

This website isn't directed at children under 13. We don't knowingly collect their personal information. If you believe a child has shared information with us, please contact us so we can delete it.

Security and international transfers

We use reputable providers with appropriate technical and organisational safeguards. Where data is processed outside the UK or EEA, we rely on safeguards such as the UK International Data Transfer Agreement.

Changes to this notice

We may update this notice from time to time. The "last updated" date at the top of the page tells you when it last changed.